Glioblastoma Guide Episode #1
Hello, and welcome to our first video. What is this YouTube Chanel all about? It is about sharing knowledge, offering some hope where possible, breaking down complex issues as best I can, and letting you know about my path so we may journey together. I feel that being prepared and knowledgeable may give you a better chance to succeed. I believe some of us can improve our chances and take action to potentially make a difference and I thought this YouTube channel dedicated to GBM patients may be helpful and comforting.
I plan to provide videos to share what I have learned, done, my comments, and steps that I have taken to fight GBM. All, some, or none of this information may help you; but again, no promises – GBM is voracious and there’s no getting around that. Each video will describe a topic and I urge you to review the videos several times and discuss your thoughts with your medical team, family, and friends and make your own decision about what you will do to combat your GBM. Several of these videos will discuss adjunct possibilities which are treatment options to be done alongside standard of care treatment. Other videos will provide knowledge so you can better understand what is happening and potentially make better- informed decisions. I know how shocking this diagnosis is and how difficult it is to accept this is happening; but, time is critical and we must get over the fear, anxiety, disbelief, and feeling of paralysis just as soon as possible so we can begin to take steps that may help us.
I am excited to share this information with you. There is much to learn, and I have broken it down into many videos so you can watch and re-watch as you desire. For clarity, I have tried to keep each video about one point. Some sections will build upon each other while other sections will be a completely new subject. I think this is the best way to help you absorb this information and allow you time to think about each topic.
I found the first few videos I am making to be especially important to me and I hope they provide some good information and possibilities for you. Although the outlook seems bleak, I have followed a path that has led me to this point. I am still here, alive after two years after my diagnosis on October 24, 2018, and it is my plan to make these videos that may help some of you. Knowing you are not alone and hearing what I have done may provide a ray of hope and lift your spirits. Not all of us are going to make it to or beyond that 14.6 months of median survival; but, we are in this boat together, a community, and perhaps these videos can help or provide some encouragement and comfort to you and your loved ones.
It has taken many months of reading, researching, work, and application to arrive at this moment. Instead of taking months to find, review, and put into practice all of this information on your own, it is here in one place. Watch the videos on my channel and I hope that these videos work for you like having a guide on an unfamiliar journey instead of a map. A map may be confusing, it may lead to a certain location or fate.
Whereas a guide may lead you through troubles unforeseen on the map. I invite you to join me as we walk this journey together. To watch more and to help make these videos possible please subscribe to my channel, click on the like button in each video, ask your family and friends to do the same as this is fortunately not a large community of people with GBM and this is the best way for others to find these videos. Additionally, any products that I suggest or recommend are linked below in each video or on my web site to which I may receive some proceeds to help with the costs of these videos. Also, if you feel compelled or if you can help please log onto my Patreon page as seen on- screen which will assist me in making these videos.
Please leave any positive or encouraging comments below and remember this is information I have researched, and it is helping me; it may or may not provide benefit to you. Please consult your medical team before following any steps I have taken on my journey. I hope these videos are helpful and can make a difference in your life. You can go to my website listed on screen to access the links for each video in this series in order. God bless you.